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Category: POV

Working with Caregivers: The Pilot, Ms. Swan

Working with Caregivers: The Pilot, Ms. Swan

When you are a near quadriplegic, personal support workers and caregivers act as your arms and legs. They are essential to your health and well-being. There are so many things […]

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Technology and device assistance: Mobility

Technology and device assistance: Mobility

Years ago my daughter bought me a Darth Vader bobble head doll with a “Galaxy’s Best Father” plaque. Little did she know how close this would come to reality. Not the […]

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Life is too darned short

Life is too darned short

I am here to tell you that life is too darn short to dwell on the dark! Be alive, be connected, just do it and NFQ. Yes, NFQ. Never quit […]

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Accepting Personal Support

Accepting Personal Support

Accepting personal support A brief personal background follows to help convey my lack of readiness to be a recipient of support. Following that is my daily schedule. I was poor […]

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The Support of Friends and Family

The Support of Friends and Family

Understanding the support of friends and family If you have ALS, you need help: Mind, body and soul. ALS is a progressive degenerative disease that impacts the nerves that manage […]

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A Collection of Lasts: Biking

A Collection of Lasts: Biking

A Collection of Lasts First some background on ALS and my first symptoms About ALS: ALS causes weakness with a wide range of disabilities. Eventually, all muscles under voluntary control […]

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The Mission: Accomplished?

The Mission: Accomplished?

The Mission: Accomplished? Diagnosed with ALS, three teenagers, substantial debt, working a contract two plane rides from home, marital challenges: What is your next move? My next move was primarily […]

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ABA Basics for Autism and Beyond: Consequence Power

ABA Basics for Autism and Beyond: Consequence Power

The science behind ABA (Applied Behaviour Analysis) is the science of learning and behaviour. With a little understanding of the principles, there’s nothing we can’t teach. In fact, every teacher […]

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Getting personal : In the beginning

Getting personal : In the beginning

We all are multidimensional beings. Each of us has different focus, strengths and interests.  Overly simplified the human dimensions are animal, intellectual, spiritual and social. I lived my life predominantly […]

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Introducing: ALS Unlimited

Introducing: ALS Unlimited

“Honestly Tommy, we’re not getting out of this one alive.” – Don Manns (a friend) One of the first things people learn about ALS is that there is no known […]

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