A few months ago Brandon Murphy and his classmates were asked to film a documentary. The result is this 15 minute video of my story and how it has affected and […]

When you are a near quadriplegic, personal support workers and caregivers act as your arms and legs. They are essential to your health and well-being. There are so many things […]

Years ago my daughter bought me a Darth Vader bobble head doll with a “Galaxy’s Best Father” plaque. Little did she know how close this would come to reality. Not the […]

I am here to tell you that life is too darn short to dwell on the dark! Be alive, be connected, just do it and NFQ. Yes, NFQ. Never quit […]

Accepting personal support A brief personal background follows to help convey my lack of readiness to be a recipient of support. Following that is my daily schedule. I was poor […]

Understanding the support of friends and family If you have ALS, you need help: Mind, body and soul. ALS is a progressive degenerative disease that impacts the nerves that manage […]

A Collection of Lasts First some background on ALS and my first symptoms About ALS: ALS causes weakness with a wide range of disabilities. Eventually, all muscles under voluntary control […]

The Mission: Accomplished? Diagnosed with ALS, three teenagers, substantial debt, working a contract two plane rides from home, marital challenges: What is your next move? My next move was primarily […]

“Honestly Tommy, we’re not getting out of this one alive.” – Don Manns (a friend) One of the first things people learn about ALS is that there is no known […]